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MIL OSI Translation. Region: Russian Federation –

The decision was made at the request of the parents.

Document

Resolution of October 22, 2020 No. 1719

All children with phenylketonuria will be assigned a disability until adulthood. The decree on this was signed by the Prime Minister Mikhail Mishustin.

Earlier, during the initial examination, the status of “disabled child” was assigned for a period of up to 18 years only to those who suffer from a severe form of the disease. Those who were diagnosed with a milder form were given a disability until the age of 14. Then it was necessary to confirm it, additionally passing a medical examination.

The approach will now be revised. This is due to the fact that patients with phenylketonuria between the ages of 14 and 18 often have a worsening state of health and develop complications. In such conditions, children need even more attention from doctors, enhanced social support. The decree will help solve these problems.

Phenylketonuria is a genetic disease associated with a violation of the production of amino acids, primarily phenylalanine. In some cases, it can lead to damage to the central nervous system. In 2019, more than one thousand minors were diagnosed with this disease.

The signed document changes to the Government Decree of February 20, 2006 No. 95.

EDITOR’S NOTE: This article is a translation. Apologies should the grammar and or sentence structure not be perfect.

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